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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Amanda laying down on a hospital bed smiling.

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What I Wish I Would Have Known Before Trikafta

Although I had been told that my coughing would stop, I wish I had known more about the transformative change that Trikafta® would have on my life. It has almost made me wistful for the time when I was sick, back when I was more in tune with what my body was experiencing.

| 6 min read
Morgan Barrett outside smiling in a selfie photo.

BLOG

Losing My CF Identity

Now that I am feeling healthy on Trikafta®, I no longer feel special for thriving despite the challenges of cystic fibrosis. I don’t feel like I belong in the CF community anymore, and I miss that sense of camaraderie that comes from a shared struggle.

Morgan-Barrett-Headshot
| 7 min read
Elizabeth Tressel Family Outside

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Because of Trikafta, I Am Training for My First Marathon

After starting Trikafta, I decided to try running again, and I grew to love it. Because of COVID, I had to conduct my own races in 2020, but now I have joined a running group and am preparing to run my first marathon at the end of September.

Elizabeth Tressel Headshot
| 6 min read
Breck-Gamel-Trikafta-Smiling-Featured-Rectangle

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How I’m Preparing for Trikafta’s Expected Approval for Children Ages 6-11

I am anxiously awaiting the U.S. Food and Drug Administration's approval of Trikafta for children with cystic fibrosis ages 6 to 11. To prepare, I'm doing everything I can to ensure my 11-year-old son can take advantage of the medication as soon as it is approved.

Breck-Gamel-Headshot
| 4 min read
Katie-Fielding-Selfie-Featured-Rectangle

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Medical Milestones, and the Next Generation of the CF Community

It might seem strange but for someone with cystic fibrosis, something as simple as a mammogram can spark joy. It means that I have lived long enough to have reach this preventive care milestone, and that is something to celebrate.

Katie-Fielding-Headshot
| 4 min read
Lauren-Luteran-Dancing-Featured-Rectangle

BLOG

Taking Trikafta Topped My Experience on Reality TV

Dance has always been my passion, and it led me to audition for my dream reality show, “So You Think You Can Dance.” Although I never thought anything could top my experience on the show, Trikafta® has exceeded my expectations, and I am feeling better than ever.

Lauren-Luteran-Headshot
| 7 min read