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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Margarete smiling with her friends in a selfie photo.

BLOG

Making Lifelong Friendships With Other Moms of Kids With CF

A chance meeting at a CF conference 12 years ago gave me one of the most valuable gifts: my CF Mama friend group. Since then, we’ve invested time in our friendship and supported each other through the laughs and the tears.

Margarete Cassalina
| 5 min read
Alyssa Buechner on the set of Channel 15 News

BLOG

Reducing Stigma Around CF

As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.

Alyssa Buechner
| 5 min read
Judy in a hospital bed smiling with Lacey eating popsicles.

BLOG

How Chronic Illness Brought Us Together

My friendship with Judy, who had cystic fibrosis, helped me see how I could accomplish my career goals despite my own chronic illness. Unfortunately, she died six years ago, but her inspiration lives on, and I know she would be proud of me.

Lacey Stevenson
| 5 min read
Drew smiling hugging her husband, Ramon.

BLOG

Role Reversal: When Someone With CF Becomes a Caregiver

As someone with cystic fibrosis, I struggled with the fact that I might be a burden to those who helped care for me. Things changed when I married Ramón and learned the true meaning of caregiving.

Drew-Dotson-Headshot
| 5 min read
Devyn smiling looking up at her fiancée.

BLOG

Dating and CF

Having cystic fibrosis interfered with many of my romantic relationships and I was hesitant to disclose it. But, then I met somebody who accepted me and my CF.

Devyn Crisman headshot
| 5 min read
Kirsten Michelle Cills speaking into a microphone

BLOG

How Comedy Helped Me Cope With CF

Growing up with cystic fibrosis was often lonely, but discovering how to make myself and others laugh helped me navigate those years and gave me a purpose in life.

Kirsten Michelle Cills headshot
| 8 min read