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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Vertex Copay Assistance: Tips from a CF Pharmacist

If you receive financial assistance from Vertex GPS™ for a modulator therapy (e.g., Trikafta®, Symdeko®, Orkambi®, or Kalydeco®), you may be impacted by changes Vertex has made to its copay assistance program. The following tips can help you understand how you may be impacted and what next steps may be available to you.

Head shot of pharmacist.
Nov. 7, 2022 | 6 min read


Our Pharmacist: My Son’s Unofficial Care Team Member

Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.

Nov. 15, 2016 | 5 min read


I Am Not My Job

When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.

Jan. 29, 2016 | 5 min read


The Working Mama

Going back to work was hard. So. Very. Hard. But with the mounting costs of cystic fibrosis, I didn't have a choice. The decision had been made for me.

Dec. 16, 2015 | 4 min read


5 Tips for Navigating Health Insurance with CF

Like many of my millennial compatriots, I was booted from my parents' health plan when I turned 26. While my friends were shrugging health insurance off as just another growing pain of their 20s, I was panicking. 

Oct. 30, 2015 | 5 min read