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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Ryan holding his two daughters at the finish line of a race


Learning to Fuel My Body as a Runner With CF

When I realized how much my nutrition strategy was impacting my performance as a marathon runner, I decided to reevaluate my plan to be more intentional about how to best fuel my body before running.

Ryan Grass headshot
Nov. 13, 2023 | 5 min read
Gabrielle laying in bed with her mom while using her nebulizer


Figure Skating Helped Me Cope With My CF Diagnosis

My life was turned upside down when I was diagnosed with cystic fibrosis caused by a rare mutation, but my passion for figure skating has helped me stay healthy and happy through it all.

Gabby wearing a purple Great Strides t-shirt
Sept. 13, 2023 | 5 min read
Rachel Leah performing a one-arm dumbbell row in the gym


How I Learned to Be Proud of My Body With CF

As a personal trainer, I used to feel insecure about the physical effects of CF on my body. But over time, I’ve learned that my strength is defined by so much more than my appearance.

A selfie of Rachel Leah
Sept. 7, 2023 | 6 min read
Josh giving a thumbs up at the finish line of a marathon, wearing a medal around his neck.


How Hard Truths From My Care Team Helped Me Qualify for the Boston Marathon

At times, my pediatric CF care team told me about the possible negative outcomes of my cystic fibrosis. Their gentle support helped prepare me for unexpected good health, and is one reason why I was able to qualify for the Boston Marathon. 

A professional headshot of Josh Weiss
Aug. 15, 2023 | 6 min read
Michael Burke wearing a helmet and sunglasses, and smiling with his wife outside


What I Learned Biking 480 Miles With CF

Michael Burke bicycled 480 miles in six days to raise money for cystic fibrosis — an unprecedented challenge that he used to think was impossible until advances in CF care helped him live boldly.

A professional headshot of Michael Burke
July 18, 2023 | 5 min read
Dustin Raynor holding a wrestling belt and posing in front of an American flag


Becoming a Professional Wrestler With CF

My whole life I pushed myself physically and mentally to achieve my dream in professional wrestling. It turns out I wasn’t dealing with CF. CF was dealing with me.

A selfie of Dustin Raynor in the car
June 27, 2023 | 6 min read