CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Chris smiling outside with his wife, Kate.


What To Do When “Most People Will Be Fine” And You Are Not “Most People”

Having CF has always involved doing things nobody else around us is doing because, well, we have to — and COVID-19 won’t be any different. As a post-transplant CF patient who happens to be a practicing pharmacist, I am writing about the tools we now have in a world of limited universal restrictions and precautions.

Chris Raybuck
| 8 min read
Cambrey smiling with her husband and son.


Struggling to Process My Son’s Rare Mutations

I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.

Cambrey White
| 6 min read
Marco Rosales


More Than a Lung Disease

I never had the luxury of time to reflect on the hardships that I experienced fighting cystic fibrosis because I was too focused on that particular day’s struggle. Still, there are two experiences that have stuck with me even though they were more than 10 years ago.

Marco Rosales headshot
| 5 min read
Jennifer Riley crossing the finish line at the marathon.


CF and COVID-19 Couldn’t Keep Me From Running

After a childhood spent running, I had largely given it up by the time I became an adult. But five years ago, it became my outlet. CF and COVID-19 temporarily sidelined me, but as long as there is air in my lungs, I won’t ever give up.

Jennifer Riley headshot
| 6 min read
Janeil smiling looking down at her baby.


What I’ve Learned About Breastfeeding With CF

Breastfeeding when you have CF is more complicated than it is for people who don’t have CF. Here’s what I’ve learned about it with my kids.

| 6 min read
Kasey standing in front of a chalk mural that is a picture of rainbow wings.


The Best Reluctant Decision I Ever Made

I resisted being listed for a lung transplant; but now, almost six years later I’m thankful — especially to my donor — for my new life.

Kasey Raffensperger headshot
| 10 min read