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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Shandra and her daughter holding hands and wearing black gowns outside


How I Fulfilled My Dream of Graduating

I was determined to finish school and set a good example for my children. Along the way, I learned how important it is to have a strong support system to help manage the challenges that can come with cystic fibrosis while I pursue my dreams.

A selfie of Shandra Arceneaux
Sept. 5, 2023 | 5 min read
A photovoice study participant embracing her toddler son.


Understanding the Intersection of Parenthood and CF

Researchers from the University of Pittsburgh wanted to better understand the realities of parenting as a person with cystic fibrosis, so they collected firsthand accounts from members of the CF community.

A professional headshot of Olivia Stranksy
Aug. 16, 2023 | 5 min read
Carolanne kissing her newborn.


What the First Year of My Son’s Life With CF Has Taught Me

Accepting my son’s cystic fibrosis diagnosis has been a year-long journey for our family. I learned there is more to motherhood with a chronically ill child than meets the eye.

Carolanne Cimino
Dec. 5, 2022 | 7 min read
Nicholas Kotowski Baby Sonogram


Why We Chose Surrogacy After My Wife With CF Had a Lung Transplant

My wife and I opted for a surrogate to carry our child following her double-lung transplant. After five years of struggling with a bad surrogacy agency, we finally switched providers and found a surrogate who is now carrying our child.

Sept. 2, 2021 | 6 min read


Trikafta Brought Me Twins

Because of the shortened life expectancy projected for those with cystic fibrosis, I was always cautious about the idea of having children. Those fears melted away after I started Trikafta® and received the greatest surprise of my life.

Feb. 19, 2021 | 7 min read


What I Wish I Knew When I Was Pregnant With CF

When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.

Feb. 9, 2021 | 5 min read