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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Justin Goldsmith and his wife smiling


The Challenges of Becoming a Dad With CF

My wife and I knew that following our dream of having children would be difficult, but we would do whatever it takes to grow our family. Despite the challenges we’ve experienced on our in-vitro fertilization (IVF) journey, we will continue to fight to make our dream a reality.

A professional headshot of Justin Goldsmith
| 7 min read
Marisa smiling outside with her family.


The Challenges of Pregnancy With CF

I was determined to make my dream of becoming a mother a reality despite the potential risks that pregnancy can cause for people living with CF. It certainly wasn’t easy, but the challenges of pregnancy and CF were rewarding in the end because I now have two wonderful girls who call me mom.

Marisa Fairchild
| 6 min read
Kayla smiling with her husband and daughter on a hayride.


CF Community Support Helped Me Through the Emotions of Pregnancy

After my daughter’s cystic fibrosis diagnosis, I knew I still wanted more than one child. But, the journey trying to conceive my second child was stressful and emotional.

Kayla Fisher
| 7 min read
Megan smiling while holding her son, Isaac.


How I Navigated Breastfeeding My Son With CF

Breastfeeding a child comes with a lot of challenges, dedication, and love. Breastfeeding a child with cystic fibrosis brings all of these aspects to a different level. As a first-time mom wanting to breastfeed exclusively, here’s what I have learned while breastfeeding my son, Isaac.

Megan Pate
| 8 min read
Janeil smiling looking down at her baby.


What I’ve Learned About Breastfeeding With CF

Breastfeeding when you have CF is more complicated than it is for people who don’t have CF. Here’s what I’ve learned about it with my kids.

| 6 min read
Lindsey pregnant smiling with her husband.


What I Learned While Trying to Get Pregnant

The journey my husband and I traveled while trying to conceive our son was stressful but ultimately fruitful. Here’s what I learned during that process.

Lindsey Tipsword headshot
| 8 min read
Molly smiling with her mom and two sisters.


Why I Decided Not to Have Children

I grew up thinking I would never be able to have children because of my CF. While advancements in treatments have made motherhood a possibility for many, I ultimately made the painful decision to not have children.

Molly Baker headshot.
| 6 min read
Ryan Grass smiling with his wife and twin daughters.


When Are You Going To Have Kids?

On our journey to become parents, my wife and I experienced several disappointments and began to question the entire process. Meeting our daughters made it worthwhile.

Ryan Grass headshot
| 5 min read


What I Wish I Knew When I Was Pregnant With CF

When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.

| 5 min read


Becoming a Dad After Receiving a Lung Transplant

Because of the medications I must take as a result of my lung transplant, I thought it might be too difficult to conceive a baby through in vitro fertilization. I was wrong. I'm expecting a son in November.

| 4 min read


Reproductive Health Q&A: How Modulators Affect Fertility and Pregnancy in CF

Does Trikafta® increase the chance of pregnancy for women with cystic fibrosis? Can men regain their fertility on modulators? I recently had a candid chat with the chair of the Women's Health Research Working Group to find out the answers to these and other questions about reproductive health.

| 11 min read


Facing and Embracing CFRD

Although I didn't have cystic fibrosis-related diabetes, I avoided dealing with my blood sugars. Now that I do, I feel stronger physically and emotionally.

| 5 min read