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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Jaclyn smiling with her husband and her son, Major, in front of a football field


Deciding When to Remove My G-Tube as A Kid With CF

With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.  

Major Strube wearing a football jersey
April 4, 2024 | 6 min read
Ryan holding his two daughters at the finish line of a race


Learning to Fuel My Body as a Runner With CF

When I realized how much my nutrition strategy was impacting my performance as a marathon runner, I decided to reevaluate my plan to be more intentional about how to best fuel my body before running.

Ryan Grass headshot
Nov. 13, 2023 | 5 min read
Carolanne holding her baby, Bellamy, and smiling at the camera during a family photoshoot.


Learning to Meet the Nutritional Needs of My Baby With CF

My son’s CF diagnosis created an unexpected challenge while breastfeeding him. But through practice, help from our care team, and support from the CF community, we found the perfect balance to meet his nutritional needs.

Carolanne Cimino
Oct. 18, 2023 | 11 min read
Patrick wearing a purple chef uniform.


Becoming a Chef Has Helped With My CF

Once I started Trikafta®, I became healthy enough to go to culinary school and become a chef.
By learning how to cook diverse cuisines, I improved the quality of my own meals, ate more, and have been able to maintain my weight. 

Patrick Allen Brown
Oct. 12, 2022 | 6 min read
Liz feeding her daughter Patricia


Helping My Daughter Learn to Like Food

My daughter was born with cystic fibrosis and with an aversion to food. Teaching her to enjoy meals has been crucial to helping her grow and stay healthy.

Liz Frater headshot.
Jan. 18, 2022 | 5 min read


How I Avoid Making Different Meals for Each of Our Family Members

Cooking for a family of three -- one of us with CF and all of us having different diets -- makes mealtime complicated. It's taken some time, but I finally found the key to satisfying our whole family's needs at dinnertime.

April 2, 2021 | 5 min read