CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Breanna Ragland smiling in a bean bag chair with her dog in her lap next to her treatments.


Being Diagnosed With ADHD Made Life With CF Easier

I recently was diagnosed with a type of attention deficit hyperactivity disorder, which helps explain why I sometimes didn’t keep up with daily care. By taking ADHD into account, I’m managing my cystic fibrosis better.

Breanna Ragland headshot.
| 6 min read
Tiffany Rich Smiling at the Pool


Adjusting to Life With CFRD

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

| 5 min read


How We Dealt With Our Newborn’s CF-Related Bowel Problems

Because my daughter's bowel perforated when she was a newborn, she needed to have surgery to temporarily reroute her stool so that it was collected through her abdomen into an ostomy bag. Those grueling days of ostomy care -- sometimes as often as every hour day and night -- were some of the darkest days of our cystic fibrosis journey.

| 6 min read


What I Wish I Knew About Adrenal Insufficiency

I struggled when I learned that in addition to cystic fibrosis, my daughter also had adrenal insufficiency. I felt anger, sadness, and anxiety. But thankfully, with the support of my husband, family, friends, and care team, we learned how to manage her condition and deal with emergencies.

| 8 min read


Managing Other Health Conditions With CF

It can be a lot to manage two children with cystic fibrosis who have other health issues. I made it work by making my children responsible for their own treatments and not sweating the small stuff when we can't be perfect.

| 4 min read


CFRD is the Cloud in My Trikafta Silver Lining

I have seen tremendous health gains since starting Trikafta. But control of my cystic fibrosis-related diabetes has been elusive.

| 5 min read