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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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This Year, Join March on the Hill Virtually!

For people with cystic fibrosis, our story is the most powerful tool we have to stand up for ourselves and fight for our needs. Although I can't always be there to share my story with legislators in person, I'll be joining many others from the CF community for our first March on the Hill Online Day of Action to make my voice heard.

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Mara Cray
| 5 min read
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What’s Next for the CF Community and Health Care Reform

As Congress debates how to stabilize the health insurance marketplaces, several proposals would directly improve the ability of people with cystic fibrosis to access high quality, specialized care.

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Mary B. Dwight
| 4 min read
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The Senate Heard Our Voice: The Role of Advocacy in CF

With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

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Mary B. Dwight
| 5 min read
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Why I Believe in Teen Advocacy Day

I didn't always think that Teen Advocacy Day could make a difference. Turns out I was wrong.

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Kevin Cance
| 4 min read
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Teaching as We Learn: Visiting a CF Care Center with Policymakers

A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.

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Stacey Falardeau
| 4 min read
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U.S. Senate Cystic Fibrosis Caucus Adds Momentum to the Fight

Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”

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Sen. Edward J. Markey
| 4 min read