CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Naomi at the top of a hike.


My Unpredictable Path to Lung Transplant

A sudden health setback turned my eventual lung transplant into an immediate one. Although the transplant didn’t go exactly to plan, my preparation helped the process go more smoothly.

Naomi Feltz headshot.
Naomi Feltz
| 5 min read
Nicholas Kotowski Baby Sonogram


Why We Chose Surrogacy After My Wife With CF Had a Lung Transplant

My wife and I opted for a surrogate to carry our child following her double-lung transplant. After five years of struggling with a bad surrogacy agency, we finally switched providers and found a surrogate who is now carrying our child.

Nicholas Kotowski
| 6 min read
Kadeem Morgan Smiling On Porch


My Journey to a Second Lung Transplant

While waiting for another lung transplant, I learned that time is a wicked concept: there is so much of it, but never enough.

Kadeem D’Shai Morgan
| 6 min read


What Three Transplants Has Taught Me

Although they have been full of physical and emotional challenges, as well as life interruptions, multiple transplants have helped me become the person I am.

Nick Pettis
| 7 min read


How I Got My Life Back

I spent 2020 in COVID-19 quarantine and in the hospital separated from my family while waiting for transplant. I'm very grateful that the call came and I have new lungs -- and a new life.

Lauren Molasky Fierst
| 8 min read


My Experience With My Husband’s Lung Transplant

When I met my husband, who has cystic fibrosis, he was listed for a double-lung transplant. I thought I was prepared for that. I wasn't.

Brenna Liana
| 5 min read