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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Matison smiling in a hospital bed holding a plush toy in the shape of lungs

BLOG

Voicing My Health Needs Before and After Transplant

I have faced the continuous need to self-advocate to manage my life with cystic fibrosis, particularly when facing complications post-transplant.

A headshot of Matison Deaton smiling outside
| 7 min read
A portrait of Lauren with her husband and three children cuddling in bed.

BLOG

The Importance of Self-Advocating After Transplant

My daughter, Lauren, didn’t know that having a lung transplant would greatly increase her risk for cancer until it was too late. Her death has taught me how important it is to know the health risks faced after transplant and our need to advocate for ourselves.

A professional headshot of Gerry Sweeney
| 6 min read
Molly Baker and her mother, Ann, sitting together at a formal dinner.

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A Tribute to My Mom’s Selfless Dedication

My mom was always my biggest advocate and most selfless caretaker, but she went above and beyond when she also took my friend under her wing.

Molly Baker headshot.
| 7 min read
Portrait of Leslie Colwell and her immediate family

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Living 26 Years Post-Transplant

In the 26 years since my double-lung transplant, I’ve lived through cancers and other post-transplant complications. It’s been difficult at times to remain positive, but I won’t give up. I’m a fighter.

Portrait of Leslie Colwell in black and white
| 6 min read
Patti Prince posing with her family and dog

BLOG

What Living 16 Years Post-Transplant Has Taught Me

I had double-lung and liver transplants 16 years ago. Although nothing is guaranteed after transplant, here’s what I’ve learned maintaining my health after transplant.

Patti Prince headshot
| 7 min read
Maura Wozniak smiling at the beach with her husband and two children.

BLOG

Having Tough Conversations With My Kids About My CF

Since my kids were born, I’ve had two lung transplants and spent months in the hospital at a time for cystic fibrosis complications. It’s just as hard for my kids to go through as it is for me, so we make sure we talk about my CF openly as a family.

Maura-Corcoran-Wozniak-Headshot
| 4 min read