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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Christin smiling with her husband and three young girls.

BLOG

How I Protect Myself From Daycare Germs as a Parent With CF

Raising three kids in daycare often involves runny noses and mystery stains. As a mom with CF, I’ve figured out how to balance our daily lives with keeping me healthy and daycare-germ free.

Christin Strong
| 5 min read
Kat-Carroll-Family-Hiking-Rectangle

BLOG

Choosing My Health Over My Livelihood

Because of the threat to my health caused by COVID-19, I had to give up my dream job as a nurse practitioner. Now I am asking for paid leave expansion.

Kat-Carroll-Headshot
| 6 min read
Robyn-Petras-COVID-19-Treadmill-Featured-Rectangle

BLOG

Facing the Monster: My COVID-19 Experience

Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.

Robyn-Petras-Headshot
| 8 min read
Rima-New-Lungs-IPC-rectangle

BLOG

Keeping My New Lungs Infection-Free While Still Living My Life

Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.

Rima-Manomaitis-Headshot
| 4 min read
Gerry-Pandzik-Flu-Shot-Featured-Rectangle

BLOG

It’s Not Too Late to Get the Flu Shot

A former clinical nurse explains why you should get your flu shot.

Gerry-Pandzik-Headshot
| 5 min read
Somer-Love-Family

BLOG

An Open Letter to Family and Friends This Flu Season

Getting sick for a person with CF is so much more than a couple days off watching Netflix. It can be really scary. But you can help us stay healthy this cold and flu season. 

Somer-Love-Headshot-Updated
| 3 min read