The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
For those of us who can’t take modulators, it can sometimes feel like you’ve been left behind. But I have found hope and motivation by participating in clinical trials.
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The Egan family, currently featured on the homepage of CFF.org, share more about their sassy little girl, how much their support system means to them, and what inspires them in the search for a cure for cystic fibrosis.
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The Woods family, currently featured on the homepage of CFF.org, share their favorite part of Great Strides walk day, their proudest moments as parents of a child with CF, and more.