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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Ryan holding his two daughters at the finish line of a race

BLOG

Learning to Fuel My Body as a Runner With CF

When I realized how much my nutrition strategy was impacting my performance as a marathon runner, I decided to reevaluate my plan to be more intentional about how to best fuel my body before running.

Ryan Grass headshot
| 5 min read
Carolanne holding her baby, Bellamy, and smiling at the camera during a family photoshoot.

BLOG

Learning to Meet the Nutritional Needs of My Baby With CF

My son’s CF diagnosis created an unexpected challenge while breastfeeding him. But through practice, help from our care team, and support from the CF community, we found the perfect balance to meet his nutritional needs.

Carolanne Cimino
| 11 min read
Patrick wearing a purple chef uniform.

BLOG

Becoming a Chef Has Helped With My CF

Once I started Trikafta®, I became healthy enough to go to culinary school and become a chef.
By learning how to cook diverse cuisines, I improved the quality of my own meals, ate more, and have been able to maintain my weight. 
 

Patrick Allen Brown
| 6 min read
Liz feeding her daughter Patricia

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Helping My Daughter Learn to Like Food

My daughter was born with cystic fibrosis and with an aversion to food. Teaching her to enjoy meals has been crucial to helping her grow and stay healthy.

Liz Frater headshot.
| 5 min read
Rebekah-Brooks-Daughter-Eating-Featured-Rectangle

BLOG

How I Avoid Making Different Meals for Each of Our Family Members

Cooking for a family of three -- one of us with CF and all of us having different diets -- makes mealtime complicated. It's taken some time, but I finally found the key to satisfying our whole family's needs at dinnertime.

Rebekah-Brooks-Headshot
| 5 min read
GM-Brown-Cutting-Board-Veggies-Featured-Rectangle

BLOG

What It’s Like to Experience Food Insecurity as a Person With CF

Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know -- I have experienced it myself and had to accept government assistance to buy food.

GM-Brown-Headshot
| 8 min read