CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Carolanne kissing her newborn.


What the First Year of My Son’s Life With CF Has Taught Me

Accepting my son’s cystic fibrosis diagnosis has been a year-long journey for our family. I learned there is more to motherhood with a chronically ill child than meets the eye.

Carolanne Cimino
| 7 min read
Nicholas Kotowski Baby Sonogram


Why We Chose Surrogacy After My Wife With CF Had a Lung Transplant

My wife and I opted for a surrogate to carry our child following her double-lung transplant. After five years of struggling with a bad surrogacy agency, we finally switched providers and found a surrogate who is now carrying our child.

| 6 min read


Trikafta Brought Me Twins

Because of the shortened life expectancy projected for those with cystic fibrosis, I was always cautious about the idea of having children. Those fears melted away after I started Trikafta® and received the greatest surprise of my life.

| 7 min read


What I Wish I Knew When I Was Pregnant With CF

When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.

| 5 min read


Becoming a Dad After Receiving a Lung Transplant

Because of the medications I must take as a result of my lung transplant, I thought it might be too difficult to conceive a baby through in vitro fertilization. I was wrong. I'm expecting a son in November.

| 4 min read


Parenthood After a Lung Transplant

After a double-lung transplant, I realized I needed to take care of myself to be a good mother to my son.

| 6 min read