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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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A scenic photo of the sun shining through the woods

BLOG

Managing My Mental Health as a Teen With CF

Spending so much of my childhood in and out of the hospital and doing CF treatments was already enough to deal with, so it felt easier to keep my mental health challenges hidden. However, speaking up about my feelings helped me learn that caring for my mental health is as important as taking care of my physical health. 

A blue background with the initials NH in white text
| 4 min read
Steph Hansen smiling and walking down a cobblestone road

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My Journey With Nonsense Mutations

Back in 2015, my genetic sequencing revealed one nonsense mutation. But recently, I learned I have another nonsense mutation that may not have been identified when my genes were first sequenced. As more mutation-dependent therapies are developed, it’s crucial that people with CF have accurate information so they can make informed decisions.

A professional headshot of Steph Hansen
| 6 min read
Ashley wearing a Directors t-shirt and instructing an actor on the set of a film

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How It Feels to See CF on Screen

Seeing cystic fibrosis portrayed in film and on TV is a mixed bag, and often my disease is overly dramatized to get more views. But I still think there’s value in making people more aware of CF.

Ashley Wilson
| 5 min read
Mary Katherin smiling with a coworker in the CF care center where she works

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A Message to My CF Patients

Working as part of a cystic fibrosis care team gives me the opportunity to provide the type of personal care I’m passionate about — I just hope my patients understand how much we are invested in their well-being. 

A professional headshot of Mary Katherine
| 4 min read
Jennifer sitting on her living room floor holding a cotton ball up to her dog

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How I Trained My CF Service Dog to Detect Bacteria

I learned that service dogs for diabetics can be trained to detect the scent of high or low blood sugar. Could this type of training be effective for teaching my service dog to detect when I have a bacterial infection?

A headshot of Jennifer Kyle
| 5 min read
Rachel smiling with her dog, who is wearing an Oregon State University harness

BLOG

How Pharmacy School Changed My Perspective on CF

From a young age, I was determined that cystic fibrosis would never stop me from pursuing my dreams in the medical field. It wasn’t until I hit a road bump in pharmacy school that I realized my CF could actually give me a unique advantage.

A professional headshot of Rachel Salmon
| 6 min read