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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Julie hiking in the woods and turning around to smile at the camera

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A CF Diagnosis at My Age?

I was recently diagnosed with cystic fibrosis at age 67. Although I love my CF care team, I think it will be important for them to understand age-related care in addition to CF care — especially as the CF population ages.

A headshot of Julie Carel
| 7 min read
Art Brace standing in front of a vista in Tuscany, Italy.

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Changing Expectations: What Living Longer Means for Care

People like me are living longer — median survival for someone with cystic fibrosis is now 56 thanks to research and care. But as I grow older, my health is getting more complicated and I'll need my care to keep up.

Art Brace Headshot
| 5 min read
Photograph of Melissa Shiffman and her husband standing outside

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Turning 50 With CF

I have had a fortunate life with cystic fibrosis given the fact that I married, had two kids, and a career. However, with increasing — and sometimes bewildering — health issues, I’m beginning to wonder whether it’s my CF or just aging, or something in between.

Melissa-Shiffman-Headshot
| 7 min read
Larissa smiling outside with her two sons.

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Embracing the Realities of Aging With CF

Now that I’m in my 40s and post-lung transplant, I’m beginning to embrace the realities of aging with cystic fibrosis. Despite the gray hairs and deepening wrinkles, I know that I am lucky to be looking forward to mammograms and menopause.

Larissa Marocco headshot
| 6 min read
Meagan Tenyer sitting outside her RV.

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The Future Is Now: The Changing Needs of People With CF

The third plenary at this year’s North American Cystic Fibrosis Conference focused on the changing needs of the CF population that are compelling an evolution in CF care. As a person with CF, this evolution in care directly affects me as I face the challenges of living longer with this disease. 

Meagan-Tenyer-Headshot
| 3 min read
Richard smiling with a waterfall in the background.

BLOG

Not Being Prepared to Outlive Your Loved Ones

Throughout my life with cystic fibrosis, I never thought about the prospect that I would outlive my loved ones. Now that I have attended some of their funerals, the thought of my own mortality has caught up with me. 

Richard Caldwell
| 7 min read