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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Morgan Nudel holding flowers in a hospital room


Learning to Take Charge of My Health as a Young Adult With CF

From scheduling appointments to dealing with insurance, taking charge of your own care is a part of becoming an adult with cystic fibrosis. However, when the time came for me to take over these responsibilities, I realized more could be done to make the transition smoother.

Morgen Nudel
| 6 min read
Ashely holding a nebulizer to her mouth in front of a wall of art.


Listening to My Voice

My voice plays an important role in managing my cystic fibrosis. Breathing techniques that I have learned as a singer help me perform pulmonary function tests and my voice can signal a change in my health — if I listen to it.

| 8 min read
Jennifer and her son wearing Medieval Times crowns


It’s OK to Take Time to Rest

Life with cystic fibrosis can come with many recovery days. But it’s hard for me to avoid feeling guilty when I need time to rest and recharge. Working harder to be more productive and make up for the time I lost at work and with family while resting often leads me right back to my couch and needing to take another day to rest.

Jennifer Albright
| 7 min read
Amanda Biederman in the hospital with oxygen tubes and a port.


What I’ve Learned About Self-Advocacy as a Person with CF and Nurse

Not only am I a member of the CF community, but I’m also a member of the clinical community — an oncology nurse — and I have had to endure hard lessons to learn to advocate for myself and get the medical care I need.

Amanda Biederman Headshot
| 12 min read
Kianna holding her dog in the woods.


How I Got Through the Forest Fires in Oregon

My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper. 

Kianna McAdams
| 7 min read
Maddy smiling in her college dorm next to her bed.


How CF Taught Me to Be Flexible

When I was in college, I wanted to do it all and my health wasn’t as much of a priority anymore. I learned to accept that things will not always go according to plan and to integrate routine in my life to ensure my health comes first.

Maddy Hamp
| 5 min read