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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Jenifer-Sanregret-CF-and-Homeschooling-featured

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CF Prepared Me for Isolation, But Not Homeschooling

The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.

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| 5 min read
Caroline-Kent-Marching-Band-Featured-Rectangle

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Why I Chose to Go Back to School in Person

My school gave students a choice of how they want to go back to school: virtually or in person. After considering what made sense for my CF, learning style, and mental health, I decided to attend school in person.

Caroline-Kent-Headshot
| 5 min read
Jenny-Livingston-Daughter-Mask-Featured-Rectangle

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Putting Convenience Before the Vulnerable

Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.

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| 6 min read
Betsy-Sullivan-Studying-Featured-Rectangle

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What I Wish Colleges Would Understand About Reopening

When my university first shut down in March because of COVID-19, I thought our quarantine would be temporary. Now I am contemplating a fully online fall semester. I'm calling on all colleges to continue to accommodate the needs of their high-risk students.

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| 6 min read
Ginger-Birnbaum-Zoom-Screenshot-Featured-Rectangle

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Answering Questions on School Reopening and CF

As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.

Ginger-Birnbaum-Headshot
| 3 min read
Kaitlyn-Vargas-Graduation-OG

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10 Tips for Teens With CF Going to College

Starting college was a big change for me. Now that I have just graduated, I want to share some tips that helped me be successful with teens with CF who may soon be starting college.

Kaitlyn-Vargas-Headshot
| 5 min read