Blog

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Xan Nowakowski Thumbs Up Watching NACFC

BLOG

Expanding Treatment Options for Everyone Who Has CF

I was pleased to see that the third plenary session at the North American Cystic Fibrosis Conference included patient stories that reflected the diverse experiences of those with cystic fibrosis. I also like that it focused on the need for bold action to help those who can't benefit from modulators and centered on the full ecology of treatment innovations that can benefit every person with CF.

Xan Nowakowski Headshot
Alexandra “Xan” Nowakowski
| 7 min read
Art Brace and Carmen in Italy

BLOG

Expanding the Scientific Frontier to the Next Generation of Therapies

After watching the second plenary of the 2021 North American Cystic Fibrosis Conference, I was incredibly impressed by the level of support the Cystic Fibrosis Foundation is providing to the development of the next generation of therapeutics. Developing genetic therapies -- especially those as complex as gene editing -- will take a long time and a lot of collaboration.

Art Brace Headshot
Art Brace
| 7 min read
Jennifer Gell Family Watching NACFC Online

BLOG

How CF Care Adapted to Meet the Challenges Posed by COVID-19

The COVID-19 pandemic brought great challenges to cystic fibrosis care. As Michelle Prickett showed during plenary 1 of this year's North American Cystic Fibrosis Conference, CF care teams adapted to provide care and keep us safe. It also shows where CF care may be headed in the future.

Jennifer Gell Headshot
Jennifer Gell
| 6 min read
Jacqui-Sjoberg-NACFC-Family-Featured-Rectangle

BLOG

Understudied Areas in CF Get Extra Attention at NACFC

I could fill a book with all the things I learned at the virtual North American Cystic Fibrosis Conference this year, but I am especially glad that there was a focus on diversity, gender health, and sex-based differences in CF.

Jacqui-Sjoberg-Headshot-Updated
Jacqui Sjoberg
| 5 min read
Adriane-De-Moerloose-Son-Selfie-Featured-Rectangle

BLOG

Experts at NACFC Gave Me Facts About COVID-19 -- and Peace of Mind

COVID-19 presented all of us with a great deal of uncertainty. Fortunately, several sessions at the North American Cystic Fibrosis Conference helped provide some data -- and some relief.

Adriane-De-Moerloose-Headshot
Adriane De Moerloose
| 6 min read
Meagan-Helmick-NACFC-2020-Hills-Featured-Rectangle

BLOG

What I Learned About Treating NTM at NACFC

Even though I haven't cultured for nontuberculous mycobacteria, I was excited to learn more about the treatment for the bacteria in people with cystic fibrosis during the virtual session at the North American Cystic Fibrosis Conference.

Meagan-Helmick-Headshot
Meagan Helmick
| 3 min read