Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Carter Jones wearing a black suit and smiling outside

BLOG

Finding Strength in Vulnerability

The physical and emotional toll of CF can sometimes make me feel isolated from my peers. But I’ve learned being vulnerable about my struggles can create stronger relationships that make me feel supported and loved.

A headshot of Carter Jones
| 4 min read
Brogavantty smiling next to a bouquet of yellow flowers

BLOG

Coping With Unexpected Health Complications

For so long, my identify was defined by beating the odds and achieving a successful career despite having CF. But recently, health complications have forced me to create a new identity focused on self-care. With the help of my support system, I am slowly adapting to this new chapter. 

Brogavantty Dunwoody
| 6 min read
Lydia smiling with her dog, Carl, in the kitchen

BLOG

Learning to Cope While Growing Up With CF

Growing up with CF was hard, but my parents helped me learn how to cope by both encouraging me to fight and allowing me space to complain.

Lydia-Sand-Headshot
| 4 min read
Allissa smiling and posing in her pageant crown and sash, holding a bouquet of flowers

BLOG

CF Can’t Stop Me From Doing What I Love

Having cystic fibrosis means that hospitalizations are nothing new to me. But as I get older, I am much more aware of all the events I'm missing out on — birthdays, concerts, and school field trips. So this fall, I decided to take my life back from cystic fibrosis.

Allissa smiling on the beach while holding an iguana with a lizard on her head
| 3 min read
Aliyah and her husband holding Starbucks cups in the car and smiling

BLOG

Finding Myself After Starting Trikafta

Cystic fibrosis defined my identity for many years until I participated in clinical trials for Trikafta®. As my health improved, I struggled to figure out what this meant for my sense of self. This experience motivated me to help other young adults with CF navigate the many changes that modulators can bring.

A selfie of Aliyah Novelli
| 6 min read
Kelcee posing and smiling in her cheerleading uniform

BLOG

Dealing With Judgment

Growing up, I struggled with wanting to feel “normal” because I was bullied and judged by my peers for my cystic fibrosis. But then I found genuine friendship in college and learned what it means to feel truly supported. 

A headshot of Kelcee Braden in her cheerleading uniform
| 7 min read