CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Chris Van Tiem smiling holding up a medal


Exercise to Improve Your Strength and Endurance With CF

For me, exercise has been a magical treatment for my cystic fibrosis. I have found that our bodies respond to the demands put on them, so train your body to meet a fitness goal, and your strength and endurance will improve.

Chris Van Tiem headshot
Chris Van Tiem
| 9 min read
Katie O'Grady running Boston Marathon


After a Lung Infection and a Pandemic, I Finally Ran the Boston Marathon

I’ve been a runner for most of my life. After having to drop out of three previous marathons because of my CF, I was finally ready to run this year’s Boston Marathon.

Katie O'Grady
| 6 min read
Katherine Russell Sister Running Marathon


How My Younger Sister Became My Role Model

My younger sister and I both have CF. Growing up, I tried to be a role model for her in managing the day-to-day challenges. Today, she is the one inspiring me.

Katherine Russell-Sponaugle
| 5 min read
Elizabeth Tressel Family Outside


Because of Trikafta, I Am Training for My First Marathon

After starting Trikafta, I decided to try running again, and I grew to love it. Because of COVID, I had to conduct my own races in 2020, but now I have joined a running group and am preparing to run my first marathon at the end of September.

Elizabeth Tressel Headshot
Elizabeth Tressel
| 6 min read
Micah Baker Hiking Solo


Bonding Over Breathing

When my wife convinced me to undertake a hike up to Angel's Landing, I pictured the physical challenge of it, not the friendship we would develop with another couple on the way up.

Micah Baker
| 6 min read


My Journey as an Athlete With CF

My feisty, athletic nature has gotten me through two double-lung transplants. Although my active lifestyle is different than before, I have embraced brand-new competitive pursuits that have helped me develop the mental fortitude to overcome medical adversity.

Sara Kominsky
| 6 min read