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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Trying to Weather the Emotional Storm of Physical Breakdown

My life after a 2011 lung transplant was going along smoothly -- until chronic rejection and the wait for new lungs while hospitalized took me to my physical and emotional limits.

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| 7 min read
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Transitioning Back to Real Life After Hospitalization

Stress, lack of sleep, and constant interruptions make spending time in the hospital physically and emotionally exhausting. But for me, it's just as difficult to come home from a hospital stay and get back to “real life.”

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| 3 min read
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Making the Hospital More Hospitable

Calling an inpatient stay “ideal” may sound like an oxymoron, but having the things I need to be in better health by the time I head home from a hospital stay is important.

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| 4 min read
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How I Advocate for Myself In and Out of the Hospital

I’ve learned over the years to speak up and ask questions when it comes to my cystic fibrosis care.

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| 5 min read
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What I’ve Learned About Care as a CF Patient and Hospital Administrator

As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.

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| 4 min read
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5 Easy Ways to Make the Most Out of Hospital Stays

Hospital stays are hardly a party. But since they're a part of life with CF, let's get the most out of them and help ourselves make them fewer and farther between.

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| 5 min read