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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Nathan smiling sitting on a bench outside in front of a stone wall.

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Tips on How to Support Your Partner With CF

After my partner was diagnosed with cystic fibrosis, I had to learn how to support her and keep myself from getting rundown. Over time, I have learned that doing small things, such as ordering medicines, can be enormously helpful. 

Nathan Brown
| 4 min read
Margarete smiling with her friends in a selfie photo.

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Making Lifelong Friendships With Other Moms of Kids With CF

A chance meeting at a CF conference 12 years ago gave me one of the most valuable gifts: my CF Mama friend group. Since then, we’ve invested time in our friendship and supported each other through the laughs and the tears.

Margarete Cassalina
| 5 min read
Alyssa Buechner on the set of Channel 15 News

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Reducing Stigma Around CF

As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.

Alyssa Buechner
| 5 min read
Judy in a hospital bed smiling with Lacey eating popsicles.

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How Chronic Illness Brought Us Together

My friendship with Judy, who had cystic fibrosis, helped me see how I could accomplish my career goals despite my own chronic illness. Unfortunately, she died six years ago, but her inspiration lives on, and I know she would be proud of me.

Lacey Stevenson
| 5 min read
Drew smiling hugging her husband, Ramon.

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Role Reversal: When Someone With CF Becomes a Caregiver

As someone with cystic fibrosis, I struggled with the fact that I might be a burden to those who helped care for me. Things changed when I married Ramón and learned the true meaning of caregiving.

Drew-Dotson-Headshot
| 5 min read
Devyn smiling looking up at her fiancée.

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Dating and CF

Having cystic fibrosis interfered with many of my romantic relationships and I was hesitant to disclose it. But, then I met somebody who accepted me and my CF.

Devyn Crisman headshot
| 5 min read