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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Annaka Haynes smiling and wearing blue scrubs with a stethoscope around her neck


Becoming a Nurse to Advocate for Patients

Living with CF means I quickly became familiar with the patient side of the health care field. My experiences in the hospital have motivated me to become the kind of nurse that listens to and advocates for their patients. 

A headshot of Annaka Haynes
| 6 min read
James laying on the couch with his dog


Coming Full Circle: Becoming a Genomics Scientist with CF

I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another. 

| 10 min read
A selfie of Frederick sitting in his car


How CF Influenced My Career

I had a number of professional aspirations while growing up, but cystic fibrosis caused me to play it safe. Looking back, I wonder how my life would have been different if I didn’t let CF limit me. 

Frederick Merz taking a selfie in front of the Okayama Castle
| 6 min read
Anthony McDaniel posing with his family in a park


Learning How to Balance Adult Life With CF

Fitting school, work, and CF treatments into my daily routine is tough, and when I push myself too far, my performance and health suffer. I’m determined, however, to keep going and find a balance that is right for me.

A headshot of Anthony McDaniel
| 5 min read
Lillian taking a selfie in a mirror while wearing her scrubs and PPT in the hospital


How I Balance My Career and Life With CF

Working in the medical field while having cystic fibrosis isn’t easy. But my occupational therapy career has helped me develop skills that make it easier for me to find a healthy balance between work and life with CF.

A selfie of Lillian Harrington
| 7 min read
Natalie smiling with her mask on sitting at a desk.


What It Means to Have a Full-Time Job With CF

Throughout my life with cystic fibrosis, I have marked many milestones. My most important one yet is holding a full-time job while managing my health.

Natalie Keyes
| 7 min read