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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Facing My Fears About Transitioning to an Adult Care Team

I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.

Dec. 4, 2018 | 6 min read


Top 5 Tips to Stay Healthy This Summer

I love being outside during the summer, but I make sure I have plenty of fluids and sunscreen around. Here are my top five tips to stay active and healthy this summer.

July 12, 2018 | 4 min read


How My Decision to Pursue Enteral Tube Feeding as a Teen Improved My Life as an Adult

When I first got an enteral feeding tube as a teenager, I had no idea how many doors it would open for both my health and my involvement with the cystic fibrosis community. Fifteen years later, here's how I'm doing today.

Aug. 10, 2017 | 5 min read


Why I’m Grateful for My Parents' Approach to My CF

Growing up with cystic fibrosis, my parents always encouraged me to take responsibility and be open and honest about my disease. That's why my number one piece of advice for parents of kids with CF is to entrust your child with small bits of responsibility at an early age so that they can take care of themselves down the road.

June 28, 2017 | 5 min read


Updates From a School Nurse With Three Students With CF in One School

About a year and a half ago, I started preparing for three students with cystic fibrosis at the school where I work as a school nurse. Here's an update on how things have been going.

March 23, 2017 | 4 min read


Saying Goodbye to Pediatric CF Care and Hello to Adult CF Care

Although packing up and moving to college is not easy for anyone, it becomes more complicated for a person living with cystic fibrosis. Not only do we have to adjust to the unfamiliar ways of college life and be entirely in charge of our health, but the group of people we trust with our life changes as well.

March 21, 2017 | 4 min read