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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Betty holding roses and standing between two Eastern Oklahoma chapter directors


Reflecting on 50 Years of Volunteering

Betty Robinson has been volunteering with the CF Foundation for more than 50 years. In celebration of her 100th birthday, we sat down with Betty to ask her about some of her favorite memories.

Betty Robinson smiling while wearing a sash that reads "100 fabulous years."
June 7, 2024 | 5 min read
James laying on the couch with his dog


Coming Full Circle: Becoming a Genomics Scientist with CF

I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another. 

Feb. 29, 2024 | 10 min read
A screenshot of a group Zoom meeting with Kristina Robinson and twelve other adults with CF


The Power of Meaningfully Connecting With Your Peers

Driven by a career in community health and a late cystic fibrosis diagnosis, I discovered my purpose through volunteering with the CF Foundation. Inspired by the power of connecting with my peers, I went on to develop my own program designed to support other adults in the CF community. 

Nov. 16, 2023 | 4 min read
Elizabeth Raglow and a friend smiling at a Breathe Hope table on their college campus.


Realizing the Impact of My Volunteering

I began volunteering as a way to support my cousin with CF. But over time, I discovered the community and impact that can come from even the smallest efforts.

A professional headshot of Elizabeth Raglow
June 23, 2023 | 6 min read
An adult with CF reading a book while using her vest and nebulizer


Works by the CF Community: Summer 2023

We’re highlighting three creators who are helping raise cystic fibrosis awareness. They’re voicing the variety of ways that people experience the disease by sharing a part of their life through their works.

A professional headshot of Sarah Dobson
June 5, 2023 | 4 min read
Joey smiling with his dog.


How I Gained the Confidence to Share My CF Story

When the pandemic started, I started to feel lost and disconnected. That changed when I was introduced to a new program from the Cystic Fibrosis Foundation that taught me how to share my CF story with confidence. 

Joe Milteer
July 21, 2022 | 6 min read