Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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A scenic photo of the sun shining through the woods

BLOG

Managing My Mental Health as a Teen With CF

Spending so much of my childhood in and out of the hospital and doing CF treatments was already enough to deal with, so it felt easier to keep my mental health challenges hidden. However, speaking up about my feelings helped me learn that caring for my mental health is as important as taking care of my physical health. 

A blue background with the initials NH in white text
| 4 min read
Anthony McDaniel posing with his family in a park

BLOG

Learning How to Balance Adult Life With CF

Fitting school, work, and CF treatments into my daily routine is tough, and when I push myself too far, my performance and health suffer. I’m determined, however, to keep going and find a balance that is right for me.

A headshot of Anthony McDaniel
| 5 min read
Adriana smiling with her son.

BLOG

How CF Taught Me To Appreciate Life

Having cystic fibrosis has been a double-edged sword. CF has caused suffering, but it also has given me the perspective to embrace my life.

Adriana Zamacona
| 7 min read
Newborn baby Eden laying in a basket.

BLOG

Caring for My Newborn With CF and My Mental Health

Learning that my daughter has cystic fibrosis has been a struggle for me and my family, especially as I deal with postpartum depression. 

Haley Bond
| 5 min read
Jennifer holding hands with her husband and daughter.

BLOG

Finding an Identity Beyond CF and Motherhood

As I continue to realize the benefits of Trikafta® and my daughter grows up and needs me less, I feel as though I’m losing key parts of my identity — being a person with cystic fibrosis and a mother. However, I’m also finding I have room to let myself grow and explore different sides of myself.

Jennifer-Livingston-Headshot
| 6 min read
Monique smiling with her mom hugging her and leaning on her shoulder.

BLOG

Relearning Who I Am After Trikafta

After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.

Monique Wiegand
| 6 min read