CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Kirsten Michelle Cills speaking into a microphone


How Comedy Helped Me Cope With CF

Growing up with cystic fibrosis was often lonely, but discovering how to make myself and others laugh helped me navigate those years and gave me a purpose in life.

Kirsten Michelle Cills headshot
Kirsten Michelle Cills
| 8 min read
Chris Van Tiem smiling holding up a medal


Exercise to Improve Your Strength and Endurance With CF

For me, exercise has been a magical treatment for my cystic fibrosis. I have found that our bodies respond to the demands put on them, so train your body to meet a fitness goal, and your strength and endurance will improve.

Chris Van Tiem headshot
Chris Van Tiem
| 9 min read
Maddie Grace Newton smiling and holding a microphone.


My Experience on The Voice Australia

Coping with cystic fibrosis as a child led to depression. Creativity -- especially singing -- helped me find myself and led to my auditioning for The Voice Australia.

Maddie Newton headshot
Maddie Grace Newton
| 5 min read
Handwritten sign from a child thanking doctors for their research for COVID-19.


Children With CF and COVID-19

As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19.

Lael Yonker headshot
Lael Yonker, MD
| 5 min read
Kelsey Scott selfie with baby outside


How Finding Other Mothers to Share the Good and Bad of CF Helped Me

Being a parent to a child with cystic fibrosis is hard. You need to hear from someone else in your shoes that it’s OK to grieve for the life you thought you were going to have with your child.

Kelsey Scott Headshot
Kelsey Scott
| 7 min read
Katie O'Grady running Boston Marathon


After a Lung Infection and a Pandemic, I Finally Ran the Boston Marathon

I’ve been a runner for most of my life. After having to drop out of three previous marathons because of my CF, I was finally ready to run this year’s Boston Marathon.

Katie O'Grady
| 6 min read