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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Ashley wearing a Directors t-shirt and instructing an actor on the set of a film


How It Feels to See CF on Screen

Seeing cystic fibrosis portrayed in film and on TV is a mixed bag, and often my disease is overly dramatized to get more views. But I still think there’s value in making people more aware of CF.

Ashley Wilson
| 5 min read
A woman and man sitting on a couch reading a book together.


Works by the CF Community: Summer 2022

We’re highlighting six creators who are helping raise awareness of cystic fibrosis. By sharing parts of their life with CF on paper or on screen, they’re voicing the variety of ways that people experience the disease.

| 8 min read


6 Stories on Loss and Everyday Life With CF

We’re spotlighting six authors who have written books based on their experiences with cystic fibrosis. Check out what writing about CF has meant for them, and what they hope their readers will learn from reading their stories.

| 9 min read
Maddie Grace Newton smiling and holding a microphone.


My Experience on The Voice Australia

Coping with cystic fibrosis as a child led to depression. Creativity -- especially singing -- helped me find myself and led to my auditioning for The Voice Australia.

Maddie Newton headshot
| 5 min read


Watch the Vlog: 2 Sisters Talk Five Feet Apart

Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.

| 1 min read


Meet Our Homepage Heroes: The Weyandt Family

Hear about our homepage hero, Jeremy Weyandt, and his journey to a lung transplant.

| 1 min read