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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Rachel Leah performing a one-arm dumbbell row in the gym

BLOG

How I Learned to Be Proud of My Body With CF

As a personal trainer, I used to feel insecure about the physical effects of CF on my body. But over time, I’ve learned that my strength is defined by so much more than my appearance.

A selfie of Rachel Leah
| 6 min read
Mark Tremblay sitting on the steps of the courthouse in his childhood town.

BLOG

What I Learned Growing up With CF in Appalachia

I suffered a great deal of damage growing up with cystic fibrosis in a small Appalachian town — physically and emotionally. But with a lot of hard work, I have been able to overcome some of the emotional scars.

Mark-Tremblay-Headshot
| 6 min read
Devanshi laying in the grass with a tree blossoming behind her

BLOG

How CF Has Impacted My Mental Health

I struggled with my health for years until I was diagnosed with CF at the age of 19. After starting treatments, my physical health improved greatly, yet the scars on my mental health remain.

Headshot of Devanshi Dubey
| 6 min read
Adriana smiling with her son.

BLOG

How CF Taught Me To Appreciate Life

Having cystic fibrosis has been a double-edged sword. CF has caused suffering, but it also has given me the perspective to embrace my life.

Adriana Zamacona
| 7 min read
Vanessa smiling with her mom and dad standing outside.

BLOG

How Family Relationships Have Grown Along With Day-to-Day Life

My parents made sure that I enjoyed my childhood despite my health struggles with cystic fibrosis. They focused on making sacrifices and hard decisions, such as relocating to be near my clinic, and never letting me brood over my prognosis.

Vanessa White
| 5 min read
Morgen sitting on a couch with a book open in her lap.

BLOG

CF Can’t Stop My Creativity

Dance was my life, but I had to give it up when my health was in decline. I then found a new way to express my creativity through poetry.

Morgen Nudel
| 5 min read