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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Cambrey smiling with her husband and son.

BLOG

Struggling to Process My Son’s Rare Mutations

I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.

Cambrey White
| 6 min read
Marco Rosales

BLOG

More Than a Lung Disease

I never had the luxury of time to reflect on the hardships that I experienced fighting cystic fibrosis because I was too focused on that particular day’s struggle. Still, there are two experiences that have stuck with me even though they were more than 10 years ago.

Marco Rosales headshot
| 5 min read
Jennifer Riley crossing the finish line at the marathon.

BLOG

CF and COVID-19 Couldn’t Keep Me From Running

After a childhood spent running, I had largely given it up by the time I became an adult. But five years ago, it became my outlet. CF and COVID-19 temporarily sidelined me, but as long as there is air in my lungs, I won’t ever give up.

Jennifer Riley headshot
| 6 min read
Janeil smiling looking down at her baby.

BLOG

What I’ve Learned About Breastfeeding With CF

Breastfeeding when you have CF is more complicated than it is for people who don’t have CF. Here’s what I’ve learned about it with my kids.

Janeil-Whitworth-headshot
| 6 min read
Kasey standing in front of a chalk mural that is a picture of rainbow wings.

BLOG

The Best Reluctant Decision I Ever Made

I resisted being listed for a lung transplant; but now, almost six years later I’m thankful — especially to my donor — for my new life.

Kasey Raffensperger headshot
| 10 min read
Lindsey pregnant smiling with her husband.

BLOG

What I Learned While Trying to Get Pregnant

The journey my husband and I traveled while trying to conceive our son was stressful but ultimately fruitful. Here’s what I learned during that process.

Lindsey Tipsword headshot
| 8 min read