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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Kayler Young and Family

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How Three CF Diagnoses Changed My World

I went from knowing nothing about cystic fibrosis to having the three most important people in my life diagnosed with the disease. I was shocked to learn that not only did my two children have CF, but also my husband had it.

Kayler Young Headshot
Kayler Young
| 7 min read
Jenessa Kildew Holding Newborn

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NICU Advice From a Mom of a Newborn With CF

Having a baby spend a long time in the NICU is difficult. Here are some things I learned about how to deal with it.

Jenessa Kildew Headshot
Jenessa Kildew
| 6 min read
Jake-Ward-Son-Rectangle

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Looking Back at the First Year After My Son’s CF Diagnosis

It's been a whirlwind year since my son was born and diagnosed with cystic fibrosis. Despite the surgeries, hospital stays, and challenges of living with the disease every day, I'm thankful for the people who helped pave the way.

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Jake Ward
| 5 min read
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Blindsided by CF at 52

In 2020, I went from having almost no knowledge about cystic fibrosis to the shocking revelation that I've actually been battling CF my entire life. At 53 years old, I'm still a work in progress, but I'm facing this new diagnosis head-on.

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Todd Irwin
| 6 min read
Raheema-Arbi-View-Featured-Rectangle

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What It’s Like to Have CF in Pakistan

Living in Pakistan, I didn't know I had CF until I was 18 years old. After absorbing a big emotional blow, I started to fight back.

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Raheema Arbi
| 5 min read
Marykate-Armstrong-Baby-Oxygen-Mask-Featured-Rectangle

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Advice for New Parents of a Child With CF

I was heartbroken when I learned my baby would be born with cystic fibrosis. However, my son's CF care team changed my perspective and connected me with other mothers of children with CF who became lifelines of support for me.

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Marykate Armstrong
| 4 min read