CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Breanna Ragland smiling in a bean bag chair with her dog in her lap next to her treatments.


Being Diagnosed With ADHD Made Life With CF Easier

I recently was diagnosed with a type of attention deficit hyperactivity disorder, which helps explain why I sometimes didn’t keep up with daily care. By taking ADHD into account, I’m managing my cystic fibrosis better.

Breanna Ragland headshot.
Breanna Ragland
| 6 min read
Tiffany Rich Smiling at the Pool


Adjusting to Life With CFRD

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

Tiffany Rich
| 5 min read


How We Dealt With Our Newborn’s CF-Related Bowel Problems

Because my daughter's bowel perforated when she was a newborn, she needed to have surgery to temporarily reroute her stool so that it was collected through her abdomen into an ostomy bag. Those grueling days of ostomy care -- sometimes as often as every hour day and night -- were some of the darkest days of our cystic fibrosis journey.

Jennifer Chamberlain
| 6 min read


What I Wish I Knew About Adrenal Insufficiency

I struggled when I learned that in addition to cystic fibrosis, my daughter also had adrenal insufficiency. I felt anger, sadness, and anxiety. But thankfully, with the support of my husband, family, friends, and care team, we learned how to manage her condition and deal with emergencies.

Kara Satalino
| 8 min read


Managing Other Health Conditions With CF

It can be a lot to manage two children with cystic fibrosis who have other health issues. I made it work by making my children responsible for their own treatments and not sweating the small stuff when we can't be perfect.

Desiree Cummings
| 4 min read


CFRD is the Cloud in My Trikafta Silver Lining

I have seen tremendous health gains since starting Trikafta. But control of my cystic fibrosis-related diabetes has been elusive.

Meagan Helmick
| 5 min read