CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Katherine Finegan smiling with her husband at a baseball game.


Prioritizing Myself This Holiday Season

Because I am immunocompromised after having a lung transplant, I still take extra precautions with COVID-19. I still feel awkward with turning down invitations and limiting my own guest list at gatherings, but I know my closest family and friends understand and do whatever they can to accommodate me.

Katherine Finegan headshot
Katherine Finegan
| 4 min read
Liz Fletcher smiling with her husband.


Letting Go of People Who Don’t Respect My Boundaries

Because my husband has cystic fibrosis, I take extra precautions to protect him from COVID-19 exposure. That is why I can’t continue to have relationships with friends and family who refuse to get vaccines or wear masks. They are putting my husband -- and others like him -- at risk.

Liz Fletcher headshot
Liz Fletcher
| 7 min read
Handwritten sign from a child thanking doctors for their research for COVID-19.


Children With CF and COVID-19

As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19.

Lael Yonker headshot
Lael Yonker, MD
| 5 min read
Trista Escobedo Baby Blanket


Making Tough Decisions To Keep Our Daughter Safe

Having to isolate from our loved ones after the birth of our first child -- right as the COVID-19 outbreak hit our community -- was doubly difficult, but with a little education, our support network came through for us.

Trista Escobedo Headshot
Trista Escobedo
| 9 min read


Risk Assessment in an Ever-Changing World

Even though I've been vaccinated against COVID-19, I've been using a risk assessment tool to try to make sure that I'm still being as safe as possible.

Brad Johns
| 5 min read


Why Screen Time Can Be a Good Thing

With COVID-19, a year indoors -- and online -- has brought up a familiar feeling that screen time has the potential to bring us hope and laughter. On the other hand, the internet can also convince us that the sky is falling.

Tim Koerner
| 6 min read