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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Answering Questions on School Reopening and CF

As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.

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Ginger Birnbaum
| 3 min read
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How I Teach My Son Accountability For His CF at School

Along with experiencing the typical emotions every parent has when their kids start school, I've also had to teach my son, Maddox, to take responsibility for his cystic fibrosis. 

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Elaine Ruh, MBA, PHR, SHRM-CP
| 6 min read
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Ask a Case Manager: What Should I Consider When Going to College?

In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.

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Heather Chesiyna
| 4 min read
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How We Explain My Child’s CF

Figuring out your child's CF diagnosis is complicated on its own, but learning how to communicate everything that goes into caring for your child to those outside of the CF community can be even more overwhelming. Here are my tips and tricks to using your voice to both educate and advocate on behalf of your child.

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Rachael Havey
| 7 min read
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Tips for Sending Your Child With CF to Kindergarten

Sending your child to kindergarten for the first time is hard enough, but when your child has cystic fibrosis, it is even harder. Here's how I handled my daughter's transition to kindergarten and the lessons I learned along the way.

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Julie Lazzara, M.C.
| 5 min read
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What My Children Taught Me About Explaining Their CF

As a frequent public speaker, I was surprisingly nervous the day before I spoke to my kids' classmates about the realities of cystic fibrosis several years ago. Luckily, my kids knew just what to say to calm my nerves.

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Lisa C. Greene, M.A., CFLE
| 5 min read