CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Brogavantty Dunwoody smiling in scrubs and giving a peace sign.


How Having CF Shaped My Nursing Career

When I became a nurse, I was determined to be punctual and reliable, and I excelled despite my cystic fibrosis. But on the advice of a CF doctor, I changed my career trajectory, which at first caused heartbreak, but eventually led to a leadership opportunity.

Brogavantty Dunwoody
| 5 min read
Emma smiling in a hospital bed with a feeding tube.


Having an Eating Disorder and CF

After gaining weight on IV steroids to treat my cystic fibrosis, my self-image became distorted, and I developed anorexia. I realize that I am not my illnesses, but they are a part of my life that I can’t hide anymore.

Emma Selden Headshot
| 8 min read
Brian Armstrong smiling while on oxygen.


How My Exercise Capacity Improved After Going on Oxygen

I thought my exercise capacity on continuous oxygen would decrease. Thanks to the support from others and high-intensity interval training, my exercise capacity actually increased.

Brian Armstrong
| 6 min read
Chris smiling outside with his wife, Kate.


What To Do When “Most People Will Be Fine” And You Are Not “Most People”

Having CF has always involved doing things nobody else around us is doing because, well, we have to — and COVID-19 won’t be any different. As a post-transplant CF patient who happens to be a practicing pharmacist, I am writing about the tools we now have in a world of limited universal restrictions and precautions.

Chris Raybuck
| 8 min read
Cambrey smiling with her husband and son.


Struggling to Process My Son’s Rare Mutations

I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.

Cambrey White
| 6 min read
Marco Rosales


More Than a Lung Disease

I never had the luxury of time to reflect on the hardships that I experienced fighting cystic fibrosis because I was too focused on that particular day’s struggle. Still, there are two experiences that have stuck with me even though they were more than 10 years ago.

Marco Rosales headshot
| 5 min read