Blog

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Anna Payne with a mask sitting in a hospital chair.

BLOG

34 and Living With Colon Cancer

At 34, I had no obvious symptoms or family history of colon cancer. My body was telling me something was wrong and compelled me to push for more tests to reach a diagnosis. Now every day I get up and learn to be comfortable living in the uncomfortable. With more screenings happening earlier, you may never have to.

Anna Payne headshot
Anna Payne
| 9 min read
Angel-Newman-Selfie-DVDs-Featured-Rectangle

BLOG

Six Tips to Help You Incorporate Self-Care While Managing Your CF

While you are grinding through a seemingly never-ending cycle of cystic fibrosis treatments, it also can be helpful to engage in self-care activities that bring you happiness. This nurturing routine can help you keep perspective and remind you of why you are undergoing all these treatments in the first place.

Angel-Newman-Headshot
Angel Newman
| 4 min read
Jessica-Stahlman-Family-Boardwalk-Featured-RECTANGLE

BLOG

How a Staircase Taught Me to Take Better Care of My CF

A few years ago, it took one small staircase for me to realize that my health was on the decline. I look back now on that moment fondly, though, because it helped me learn to listen to my body.

Jessica-Stahlman-Headshot
Jessica Stahlman
| 4 min read
Sydney-Sabol-Treatment-Featured-Rectangle

BLOG

Adding Medical Cannabis to My Care Plan

After careful thought, I decided to add medically prescribed cannabis to my care regimen. After using it for six months, I've noticed an improvement in both my mental and physical health.

Sydney-Sabol-Headshot-Square
Sydney Sabol
| 5 min read
Megan-Maurer-Treatment-Area-Featured-Rectangle

BLOG

How I Sustain My Daily Care

For a time, I did not always do my daily cystic fibrosis treatments. Over time, I've come to see them as a necessary part of my daily routine.

Megan-Maurer-Headshot
Megan Maurer
| 3 min read
Aubrey-Kostelec-Smile-Featured-Rectangle

BLOG

Disability is a Reinvestment, Not a Defeat

Although I resisted it at first -- and wrestled with what it said about my worth as a person -- going on disability has helped me become healthier, happier, and more fulfilled than I was when I was working.

Aubrey-Kostelec-Headshot
Aubrey Kostelec
| 5 min read