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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Sydney Reichart looking off camera at sunset in the desert

BLOG

Finding Balance With Cystic Fibrosis and Dating

Take it from me, dating with cystic fibrosis can be hard — from not having the energy to keep up with our partners to dealing with all the not-so-sexy aspects of the disease. But it’s important to not settle for anything less than the love and support we deserve.

Sydney Reichart headshot
| 10 min read
Bianca smiling with her husband, daughter, and son who is wearing a graduation robe and cap.

BLOG

Dear Moms of Children With CF

To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.

A selfie of Bianca and her son
| 4 min read
Kelcee posing and smiling in her cheerleading uniform

BLOG

Dealing With Judgment

Growing up, I struggled with wanting to feel “normal” because I was bullied and judged by my peers for my cystic fibrosis. But then I found genuine friendship in college and learned what it means to feel truly supported. 

A headshot of Kelcee Braden in her cheerleading uniform
| 7 min read
Anna Faith standing outside a hospital wearing a mask and holding her insulin pump.

BLOG

How My Community Helped Me Cope With My Late Diagnosis

After managing various chronic symptoms my whole life, I was finally diagnosed with CF as an adult. As I struggled to cope with the news, my community rallied around me and taught me what true support looks like.

Anna Faith wearing a graduation cap and robe.
| 5 min read
Chelsea kissing her husband on the beach after they are married with their wedding party in the background.

BLOG

3 Things I Learned Planning My Wedding While Having CF

Cystic fibrosis kept me from thinking that I’d ever get married, but my improved health made my dream wedding possible. Three approaches helped me manage my CF while celebrating the happiest day of my life.

Chelsea Stahl Spruance
| 7 min read
Nathan smiling sitting on a bench outside in front of a stone wall.

BLOG

Tips on How to Support Your Partner With CF

After my partner was diagnosed with cystic fibrosis, I had to learn how to support her and keep myself from getting rundown. Over time, I have learned that doing small things, such as ordering medicines, can be enormously helpful. 

Nathan Brown
| 4 min read