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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Brogavantty smiling next to a bouquet of yellow flowers

BLOG

Coping With Unexpected Health Complications

For so long, my identify was defined by beating the odds and achieving a successful career despite having CF. But recently, health complications have forced me to create a new identity focused on self-care. With the help of my support system, I am slowly adapting to this new chapter. 

Brogavantty Dunwoody
| 6 min read
Keith Connolly laying on a couch turned away from the camera

BLOG

As People With CF Live Longer, Their Needs Are Changing

My son, Keith, was diagnosed with pancreatic cancer after an initial focus on CF as the cause of his health issues. With people with CF living longer, we need more awareness of pancreatic cancer in CF individuals due to the potential increased risk.

A headshot of Teresa Connolly
| 4 min read
Erik Stinnett smiling and standing in front of a waterfall with his camera

BLOG

I Try to Ignore CF But It Won’t Let Me

I have enjoyed pretty good health, so I have tried to keep my cystic fibrosis on the back burner while I pursue my passions. Sometimes, though, CF intrudes, reminding me that it’s still here.

A headshot of Erik Stinnett smiling
| 9 min read
Samantha looking out into the distance outside wearing a hearing aid.

BLOG

How Antibiotics Took My Hearing

The antibiotics used to treat nontuberculous mycobacteria made me choose between the risk of hearing loss versus the reward of better lung health.

Samantha Marino headshot
| 7 min read
Joanie with her husband holding their baby.

BLOG

It Turns Out I Wasn’t Clumsy, I Have Vestibular Loss

All my life, I thought I was clumsy. It turns out that I had a neurological condition, bilateral vestibular loss, that was in all likelihood caused by antibiotic use.

Joanie Santander
| 7 min read