Blog

Interested in sharing your story? We want to hear from you. Fill out the CF Community Blog Contributor form to get started.

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Amanda-Henkes-Camping-Prep-Featured-Rectangle

BLOG

5 Ways to Sustain Your Daily CF Care While Camping

Going on a camping trip is a great way to relax and unplug from the daily grind, but when you have cystic fibrosis, unplugging requires some planning and strategy.

Amanda-Henkes-Headshot
| 5 min read
Betsy-and-friends-rectangle

BLOG

Finding a Balance Between CF and High School

Finding a Balance Between CF and High School

Betsy-Sullivan-Headshot-sq
| 4 min read
Susie-Rider-Andrea-Doing-Treatment-Featured-Rectangle

BLOG

6 Ways to Prepare for the Holidays When You Have CF

With the holidays fast approaching, it's time to prepare for the change of schedule in your cystic fibrosis routine.

Susie-Rider-Headshot
| 4 min read
Amanda-Gaynor-AP-Beach-Featured-Rectangle

BLOG

Keeping in Touch … With Your CF Body

Listening to my body -- and hearing what it has to say -- is not always what I want to do, but what I need to do.

Amanda-Gaynor-Headshot
| 5 min read
Rachel-Jackson-School-Bus-Featured-Rectangle

BLOG

How One School Nurse Is Preparing for Three Students With CF at the Same School

As a high school nurse responsible for 1,200 students — three of whom have cystic fibrosis — I'm finding this upcoming school year to be particularly challenging. Here is how I implemented a plan of action to keep each student safe while balancing their specific needs.

Rachel-Jackson-Headshot
| 5 min read
Colleen-Black-Freshman-featured-Rectangle

BLOG

5 Things Every College Freshman With CF Must Do

Growing up, I never had any doubts that I would one day go off to college and pursue a career, despite having cystic fibrosis. But when the time came to prepare to attend Marquette University and live on my own in Milwaukee, I knew I would need a plan in order to make my transition to college life as smooth as possible.

Colleen-Black-Headshot-2
| 3 min read