The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

It took a lot of self-advocacy — and a lot of medical testing — before I received a diagnosis of cystic fibrosis-related disorder. Fortunately, my parents supported me as I went from specialist to specialist and finally got my diagnosis.


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Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here's why I decided to say yes.


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Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.


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Sometimes, being the “squeaky wheel” is the only way to make a positive change.


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In the third plenary of NACFC, three guidelines authors announced the publication of guidelines for screening and treating depression and anxiety, and explained how the guidelines were developed. Read on for my thoughts.


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There have never been as many new CF drugs in development as there are today. In the second plenary at NACFC, Dr. George Retsch-Bogart outlined the progress we've made, the road ahead and the changes needed to make it all possible. Read on for my key takeaways.


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There's a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now and what the future holds. Read on for a quick recap.


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Hear from John P. Clancy, M.D., the first plenary speaker at this year's NACFC, about recent advances in personalized medicine, which could allow clinicians to better tailor treatment to the individual with CF.


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Connie Richless, an adult CF nurse coordinator, has seen a lot of changes in her past 22 years of working with CF patients.


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Before you can walk a mile in a person with CF's shoes, you have to put on a nebulizer.
