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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Sydney Reichart laying in a hospital bed with her Corgi.

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Grieving the Life I Once Had

Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.

Sydney Reichart headshot
Sydney Reichart
| 7 min read
Lauren and her mom smiling

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Coping With Comparisons on Social Media When You Have CF

When I scroll through my social media accounts, it’s hard not to compare myself to other people and feel like I could have accomplished so much more had it not been for my cystic fibrosis. Instead of getting depressed, I now rely on therapy, positive affirmations, and being kind to myself to preserve my mental health

Lauren Vignola headshot
Lauren Vignola
| 5 min read
Emma Selden in the Hospital

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Letting Go of People Who Didn’t Accept My CF

When I was in high school, I tried my best to hide my CF from my friends. When this put my health at risk, I knew I had to find friends who would accept me and to become a better advocate for myself.

Emma Selden Headshot
Emma Selden
| 7 min read
Dorothee-Marx-Hospital-Selfie-Featured-Rectangle

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Acknowledging My Trauma Has Made Me a Better Advocate

Understanding that I suffered trauma from medical encounters during my childhood helped make me a more effective self-advocate as an adult.

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Dorothee Marx
| 7 min read
Joey-Pelletier-Hiking-Featured-Rectangle

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My Sobriety Journey

As a person with cystic fibrosis, I used alcohol and drugs to fit in with my peers and cope with the hardships of having a chronic disease. I still struggle with sobriety, but I have taken control of my health and my life.

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Joey Pelletier
| 7 min read
Dara-Riva-Family-Photo-Featured-Rectangle

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Hope and Anxiety as My Children Await Trikafta for Ages 6-11

Although I'm glad that my two children with cystic fibrosis will soon have the opportunity to try Trikafta, I am also a little worried about whether they will have side effects and how well they will do on the drug long-term.

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Dara Riva
| 5 min read