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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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A Mountain for Avalyn

The night of our first cystic fibrosis-related fundraising gala was memorable in more ways than one. Thanks to new friendships, I got the chance to honor my daughter with CF in a special way.

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| 4 min read
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Arjun’s Planet-Sized Spirit

My son, Arjun, has had the deck stacked against him in some ways. He was born early, with cystic fibrosis, and needed surgery. His resilience, and my hopes for his future, keep me inspired.

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| 3 min read
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The Ultimate Gift: A Cure for Tobin

The initial sadness we felt when learning that our son had cystic fibrosis quickly gave way to our determination -- as a family -- to react in a productive way.

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| 4 min read
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I Have New Lungs and I Still Have CF

I had a lung transplant earlier this year and, although I'm able to do more physically than I could before my transplant, I still have cystic fibrosis. I still need support -- support from the CF community, from the CF Foundation, and from you.

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| 4 min read
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4 Tips for Connecting With Sponsors

Over the past 20 years, I've learned a lot when it comes to raising funds to support my daughter, who has cystic fibrosis. Here are some tips for connecting with sponsors to ensure fundraising success.

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| 4 min read
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I Can’t Fix CF, But I Can Make a Difference for My Son

Weeks after my son was diagnosed with cystic fibrosis, I knocked on my local chapter's door to ask what I could do to make a difference.

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| 3 min read