CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Samantha looking out into the distance outside wearing a hearing aid.


How Antibiotics Took My Hearing

The antibiotics used to treat nontuberculous mycobacteria made me choose between the risk of hearing loss versus the reward of better lung health.

Samantha Marino headshot
| 7 min read
Tania laying in her hospital bed after transplant.


My Mental Health Post-Transplant

Being in and out of the hospital and unable to recognize my own body was taking a toll on my mental health. But after my liver transplant, my family stuck by my side and helped renew my positive outlook on life. 

Tania Romero
| 7 min read
Jerry smiling with a thumbs up with his nurse in the hospital while wearing a mask.


Transplant Recovery Then and Now

I underwent liver and kidney transplants in 2021 after a successful lung transplant in 2012. For a number of reasons, the recovery from second transplant was much more difficult.

Jerry Cahill Headshot
| 5 min read
Nick smiling in front of the Chicago skyline.


Juggling My Life While on Dialysis

After two kidney transplants and one double-lung transplant, I am currently doing dialysis treatments as I wait for my third kidney transplant. Keeping a positive attitude and having friends and colleagues who support me have helped me adjust to life on dialysis.

| 6 min read
Breanna Ragland smiling in a bean bag chair with her dog in her lap next to her treatments.


Being Diagnosed With ADHD Made Life With CF Easier

I recently was diagnosed with a type of attention deficit hyperactivity disorder, which helps explain why I sometimes didn’t keep up with daily care. By taking ADHD into account, I’m managing my cystic fibrosis better.

Breanna Ragland headshot.
| 6 min read
Tiffany Rich Smiling at the Pool


Adjusting to Life With CFRD

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

| 5 min read