CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Adriana smiling with her son.


How CF Taught Me To Appreciate Life

Having cystic fibrosis has been a double-edged sword. CF has caused suffering, but it also has given me the perspective to embrace my life.

Adriana Zamacona
| 7 min read
Newborn baby Eden laying in a basket.


Caring for My Newborn With CF and My Mental Health

Learning that my daughter has cystic fibrosis has been a struggle for me and my family, especially as I deal with postpartum depression. 

Haley Bond
| 5 min read
Jennifer holding hands with her husband and daughter.


Finding an Identity Beyond CF and Motherhood

As I continue to realize the benefits of Trikafta® and my daughter grows up and needs me less, I feel as though I’m losing key parts of my identity — being a person with cystic fibrosis and a mother. However, I’m also finding I have room to let myself grow and explore different sides of myself.

| 6 min read
Monique smiling with her mom hugging her and leaning on her shoulder.


Relearning Who I Am After Trikafta

After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.

Monique Wiegand
| 6 min read
Caroline's daughter in a hospital bed with her nurses.


It’s Never Too Early to Start Therapy

At age 5, my daughter started to feel the traumatic emotional effects of cystic fibrosis. Fortunately, the care center’s social worker helped her find a healthy path through it.

Caroline Kelly headshot
| 7 min read
Shana holding up her son and making silly faces.


Take Social Media With a Grain of Salt

I’ve learned that paying too much attention to the idealized lives of people on social media can give me a skewed vision of my own.

| 6 min read