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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Jerry smiling with a thumbs up with his nurse in the hospital while wearing a mask.

BLOG

Transplant Recovery Then and Now

I underwent liver and kidney transplants in 2021 after a successful lung transplant in 2012. For a number of reasons, the recovery from second transplant was much more difficult.

Jerry Cahill Headshot
| 5 min read
Nick smiling in front of the Chicago skyline.

BLOG

Juggling My Life While on Dialysis

After two kidney transplants and one double-lung transplant, I am currently doing dialysis treatments as I wait for my third kidney transplant. Keeping a positive attitude and having friends and colleagues who support me have helped me adjust to life on dialysis.

Nick-Pettis-Headshot
| 6 min read
Breanna Ragland smiling in a bean bag chair with her dog in her lap next to her treatments.

BLOG

Being Diagnosed With ADHD Made Life With CF Easier

I recently was diagnosed with a type of attention deficit hyperactivity disorder, which helps explain why I sometimes didn’t keep up with daily care. By taking ADHD into account, I’m managing my cystic fibrosis better.

Breanna Ragland headshot.
| 6 min read
Tiffany Rich Smiling at the Pool

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Adjusting to Life With CFRD

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

Tiffany-Rich-Headshot
| 5 min read
Jennifer-Chamberlin-And-Daughter-Featured-Rectangle

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How We Dealt With Our Newborn’s CF-Related Bowel Problems

Because my daughter's bowel perforated when she was a newborn, she needed to have surgery to temporarily reroute her stool so that it was collected through her abdomen into an ostomy bag. Those grueling days of ostomy care -- sometimes as often as every hour day and night -- were some of the darkest days of our cystic fibrosis journey.

Jennifer-Chamberlain-Square
| 6 min read
Kara-Satalino-Daughter-Hospital-Bed-Featured-Rectangle

BLOG

What I Wish I Knew About Adrenal Insufficiency

I struggled when I learned that in addition to cystic fibrosis, my daughter also had adrenal insufficiency. I felt anger, sadness, and anxiety. But thankfully, with the support of my husband, family, friends, and care team, we learned how to manage her condition and deal with emergencies.

Kara-Satalino-Headshot
| 8 min read