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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Frederick Merz kneeling with a sword during iaido practice

BLOG

Martial Arts Helped Me Stay Healthy With CF

Growing up, I always tried to stay active, but it wasn’t until I was hospitalized that I decided martial arts would be the outlet to keep me healthy and boost my confidence.

Frederick Merz taking a selfie in front of the Okayama Castle
| 6 min read
Alex McCully flexing his arms in the reflection of a mirror

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My Health and Fitness Journey

Although I admired bodybuilders when I was growing up, I thought pumping iron and building muscle was impossible with cystic fibrosis — so I didn’t even try. After a hospitalization, my passion for fitness was rekindled and I discovered I could build muscle mass and improve my health.

Headshot of Alex McCully
| 4 min read
Grace running on a track with a baton.

BLOG

CF Can’t Stop Me From Running

After I was told to stick with sprints because my cystic fibrosis would make it hard to become a distance runner, I was determined to prove that this disease won’t hold me back from my goals.

Grace Lidgett
| 7 min read
Brian Armstrong smiling while on oxygen.

BLOG

How My Exercise Capacity Improved After Going on Oxygen

I thought my exercise capacity on continuous oxygen would decrease. Thanks to the support from others and high-intensity interval training, my exercise capacity actually increased.

Brian Armstrong
| 6 min read
Jennifer Riley crossing the finish line at the marathon.

BLOG

CF and COVID-19 Couldn’t Keep Me From Running

After a childhood spent running, I had largely given it up by the time I became an adult. But five years ago, it became my outlet. CF and COVID-19 temporarily sidelined me, but as long as there is air in my lungs, I won’t ever give up.

Jennifer Riley headshot
| 6 min read
Colton Cosby hiking outside

BLOG

Learning About Myself Hiking the Oregon Coast Trail

Although I had my doubts, I was able to hike the Oregon Coast Trail and learn about myself while doing it.

Colton Cosby headshot
| 5 min read