The information used to create these reports comes from the Cystic Fibrosis Foundation’s Patient Registry. The Patient Registry is comprised of information on patients who receive care at a Cystic Fibrosis Care Center (CF care center) and who have agreed to share their information with the CF Foundation. The reports derived from this information are not a rating or ranking of CF care centers and are provided for informational purposes only. These numbers tell only part of the story. The sharing of these reports is intended to strengthen the partnership between you and your care center staff and to educate and inspire action, rather than provoke judgment. You are encouraged to discuss your care center’s scores with your CF care center, and use this as an opportunity to work together to find ways to improve your or your child's health and make your care center the best it can be.
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