People often see cystic fibrosis as something that holds you back, but over time, it has become the very thing that pushes me forward. Growing up, I used to think CF made me different, that it was something I was stuck with and a problem that couldn’t be fixed. It’s taken me years to get to the point that I don’t use CF as an excuse to give up or not try. Because of my experience, I’ve accomplished more than I ever imagined possible for a 17-year-old girl. 

My family’s journey with cystic fibrosis began before I was born. My mom married a young man with CF when she was in her early twenties. Just months into their marriage, he passed away after both of his lungs failed due to this disease. Years later, my mom remarried, and they lived in the Caribbean while my dad pursued medical school. This is when I was born. Because the medical facilities were limited, there was no CF screening for newborns. Two years later, my parents moved to Utah with me — a very sick toddler. After being tested and diagnosed with cystic fibrosis, I was immediately taken to Intermountain Health Primary Children’s Hospital and started on multiple medications and treatments. 

Throughout the years of hospital visits and handfuls of pills, I often got discouraged. I used my illness as a reason to be sad and feel bad for myself. It wasn’t until a few years ago that I was able to recognize the many opportunities that I’ve had — ones most ‘normal’ kids might never have experienced. I had to learn to be grateful for everything I had and realize that there is a purpose behind everything that happens.

For instance, in June 2024, I had the opportunity to attend the Hugh O’Brian Youth Leadership Camp. I will forever look back on this summer camp as the turning point of my life. This is where I learned the importance of being who I truly am and being the best version of myself I can be. I learned that my words and actions have a ripple effect and affect way more people than just myself. After this camp, I knew I wanted to shift the way I viewed myself and others. I left wanting to make a difference in the world, especially within the CF community, because I knew I could do just that.

So, throughout this last year, I focused on community service and realized how happy helping others made me. I was amazed by how quickly I was able to shift my perspective after seeing other people’s situations and realizing how much I was blessed with despite having this disease. I finally reached the point that I no longer saw myself as a victim of the things I couldn’t control. Instead, CF became my motivation to fight. 

I didn’t choose this battle with cystic fibrosis, but I can choose what I do with it. Why let something define my weaknesses when I can use it to find my strengths instead?

This past summer, I decided I would take a step forward toward my goal of making a change in the CF community and turn my obstacles with CF into an amazing opportunity. So, I decided to compete for the title of Miss Kane County Teen and have my platform based solely around cystic fibrosis awareness and support. Not only did I want to bring awareness to my local community, but I also wanted to support individuals and families living with the disease. I became deeply passionate about my platform because I’ve seen firsthand how even the smallest acts can make a big difference when you’re living with a chronic illness. In August, I won the pageant with a ton of help and am working with so many amazing people to put smiles on people’s faces! 

I immediately made plans with friends to deliver gift bags to the CF patients at Primary Children’s Hospital in Salt Lake City! Although I can’t see all of the effects I’m having, I know how happy it would make me just to know that someone out there cares and is supporting me. I don’t fight CF just because I have to — I’m fighting to show others that they can, too.

I know this is just the beginning, and I’m beyond excited to have the blessing of sharing my story! I want my struggles to be your inspiration! Your diagnosis doesn’t define you or your limits, you do!

Interested in sharing your story? The CF Community Blog wants to hear from you.